Sunday, July 22, 2012

ADHD!

So! I have about four half-written blog posts that I never got to finishing because I'm completely unable to maintain a train of thought for any period of time, so I thought maybe I should try writing about ADHD instead!

Several months ago I wrote that my therapist suspected that I had ADHD, but eventually the results of my psychological evaluation came back and "didn't support a diagnosis of ADHD." So then I went home for the summer and started seeing a psychologist here at home, and she completely disagrees. Let me tell you why. While it may be true that every uncontrollable child with an attitude problem has been diagnosed with ADHD whether or not it's actually there, there are some people (like me) that haven't ever been diagnosed because they don't fit the stereotype. As a kid I was as far from the image of ADHD as I could get. I got magnificent grades, I was quiet, respectful, I loved learning, and I never forgot my homework. No one ever thought I could possibly have a learning problem, including me, until I was put into a higher pressure environment like college. Now it is perfectly clear that I have serious concentration issues. Even with this knowledge, however, my psych eval showed that I didn't meet the criteria for ADHD. This is because ADHD covers a wide range of problems, and a general test like the one I took wasn't specific enough to show what was really going on.

There are several types of ADHD, some of which are more widely recognized than others, but there are at least three that are widely accepted. There is the Predominantly Hyperactive-Impulsive Type that everyone notices because affected children are usually running around non-stop, talking loudly and at inappropriate times, and generally not listening to anyone. Then there is the Predominantly Inattentive Type which is much harder to spot because it often appears in low-energy children. Sufferers have a hard time staying on task because they are easily distracted and have short attention spans. They are prone to daydreaming and procrastination and tend to avoid tasks that involve even small amounts of effort. For obvious reasons, this type is often mistaken for laziness. The third type is the Combined Type, which is pretty self explanatory. General tests are often geared toward this last type, so if even if you have Inattentive Type, your lack of Hyperactive-Impulsive symptoms will lower the chances of being diagnosed. I'm pretty sure this is what happened to me.

Considering the state I'm in right now, I'm not sure how I managed to survive my whole life without realizing that I had attention problems, but I think it might be because my symptoms were being canceled out by other symptoms, namely those of OCD. Sure I daydreamed a lot, but elementary school homework doesn't exactly involve strenuous hours of concentration, plus I was compelled to make sure that every assignment was absolutely perfect. No teacher would suspect that the student with alphabetically arranged folders could have issues with organization, or that the thorough poster with perfectly straight lines could have been accomplished by a child who couldn't pay attention. So I raised no flags, other than spending too much time completing assignments, which could be attributed to being thorough instead of inattentive. High school was a bit rough, but while I didn't always feel that I was performing to my potential, I still came in ninth in my class and no one had any reason to worry about me. But then college happened (I'm pretty sure this exact line was in my last post, too).

By itself the attention problems might not have been so bad, but add it to OCD, Trichotillomania, and Depression and you've got yourself a person who cannot accomplish even the simplest task. The homework that I managed to do took far too long, and then there were the assignments that were so intimidating that every time I tried to just sit down and do them I would get anxious and start pacing or cleaning. I started losing sleep from staying up late, not because I was doing homework, but because I would get too distracted to go to bed. At my very, very worst this spring, it got so bad that I would start getting ready for bed at around 1:00am, and by the time I actually crawled under my covers, the sun would be rising. Let me just say that there are few things scarier than knowing the sun is rising and not remembering what you've been doing for the past five hours. For weeks I had nightmares about it. Every night in my dreams, regardless of when I'd actually gone to sleep, I would dream of running through the streets trying to find a bed, but I would never find one before the sun rose. Even as I'm typing this (at 1:45am) I'm starting to feel panicky. Just remembering that time makes me feel scared. I keep glancing at the window, hoping that it's just as dark as it should be. I've been home for a while, with no pressure of school work or places to go, but I haven't been to bed before 2:00am for weeks. I feel so powerless (not tonight, just in general). I feel like normal people can definitely choose to go to bed whenever they want. Don't people usually just go, "Hey, I'm tired. Time to turn in," and then just do it? When people want to go for a walk, are they able to just go outside? When they want to write a blog post, do they stare at the screen and then think better of it, or do they sit down and type? I know everyone has motivational trouble from time to time, but for two months I've been lying around thinking of all the things I want to do and doing none of them. I feel guilty about it, like I'm wasting my life, and I'm paranoid whenever I hear someone say something that might confirm my feelings of worthlessness. "How do you live with yourself when you sleep in all day? Don't you feel like you've wasted all of it?" Yes. Yes, I do. "How come you haven't cleaned your room? You said you wanted to do that weeks ago." Yes, I do want to clean my room, but I can't. I wish I could, but it hasn't really been working out. "How come you didn't do your homework? You had plenty of time." Yes, I had all the time in the world, and it slipped by me.  Time wasted. I will never be able to get it back, and I don't even remember what I was doing. Probably daydreaming unimportant thoughts. Obsessive, distracted, depressed thoughts. People act like I should just be able to fix these things, like determination is the cure for all my issues. If that were true, they wouldn't be psychological illnesses, they would be weakness and laziness. Sometimes it's even hard for me to tell the difference. How can I be sure that I'm not just lazy? How can I validate doing nothing? I can't, so for me this is even harder to deal with than OCD, Trichotillomania, and Sensory Defensiveness combined. OCD makes me more organized. Trichotillomania may be embarrassing, but it doesn't make me feel useless, just a bit weird. Sensory Defensiveness is like having super powers in all of my senses, as annoying as that can be. But ADHD and Depression make you feel like it's all your fault.

For a while I thought I might try to get through this with determination and therapy, but determination is useless if you have none, and therapy can't cure you, it can only help you realize things. It helped me to realize that I need more help than what I'm getting. Medication may be that help that I need. What's the point of being really smart if you can't do anything with it? If I'm not learning, or thinking, or writing, then what am I doing? Wasting time and my own talents. I've done a couple of test runs, and the results are promising. Caffeine is a stimulant drug very similar to the ones given to people with ADHD. Unfortunately, I'm slightly allergic to caffeine and have terrible stomach cramps every time I consume anything containing it. However, every now and then I use it for emergencies, like exams. I can say for sure that it works wonders. My brain works so much faster, like the cobwebs have been cleared away. I feel smarter and happier, and I can get things done that I would never be able to do without it, even if that's just forcing myself to clean dishes or wash my clothes. Then I get sick, of course, but for that one successful day it's completely worth it. At one point last year I was prescribed Focalin, but the semester ended before I could figure out a dosage that worked. Now, finally, I have managed to get an appointment for a medication consultation with an MD next week. Just so that I had more information to tell him, I tried taking another Focalin today, at a different dosage than before. Miraculously, I answered all the emails I'd been avoiding, studied Japanese for a hour, started planning for a new hobby, cleaned up my room a little, and then actually sat down to write this blog post, which I'm still doing because I'm completely wired. Note to self: don't take meds at night next time.

Well, it felt good getting all that off my chest. I started feeling pretty hopeless in the middle there, but I think I was able to leave it on a pretty positive note. Meds = optimism. However, it is now 2:15am, and I'm terrified of the sun, so I'm going to actually try going to sleep. After I wash my face. And floss. And brush my teeth. And brush my hair. And maybe check facebook again. Oh god, I'm doomed. And I have a headache. Hope that's not a side effect....

6 comments:

  1. I think you can out the headache down to stress.

    Last semester I also felt like that, not doing anything and completely useless, but then one day in March I just got up and was on a super adrenaline high and suddenly my whole brain shifted back to what it had been like before. (Weird, right?)

    I think because I had such a terrible first few weeks and got behind on my work, I was probably depressed - the kind of depression that makes sense because your life is terrible.

    And I know that ever since I finished my senior project it has been harder for me to concentrate if I'm not in the mood. I put it down to my bring a long-term goals person. I was in school for 13 years, then I realized there's life after that. Oops.

    But for me I think it is just laziness and lack of willpower. I'm glad you're finally getting the help you need!

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  2. Ahhh, Inattentive Type ADHD. This is my cross to bear.

    I was lucky and was diagnosed properly in elementary school. Sure, I got good grades and did well, but my sister had ADHD, so my mother got me checked with the specific tests. Thank God she did.

    In my spare time, I write. I love writing homebrew material for Dungeons and Dragons. It relaxes me and it's fun as all hell to do. When I haven't taken my medication, however, I cannot write. No matter how much I want to, I am incapable of focusing on it. And that is how I know that I truly have a problem: the inability to focus extends to things I want to do. That isn't laziness.

    My father also has ADHD, but he wasn't diagnosed until adulthood. I believe he was diagnosed after I was. I believe that he's Inattentive Type, too. And, from him, I've learned exactly how hellish dealing with ADHD without meds can be. He went through law school and spent decades working as a lawyer without meds. I've asked him how, and he said that he achieved it by being incredibly stressed and miserable. So, there's that.

    Time-loss scenarios can be scary. Really scary, in fact. I usually end up cursing at myself and hating myself. I can't really offer you any solutions there. What I can do is tell you to also look into the short-acting Focalin tablets. I take standard Focalin in the morning, followed by a short-acting tablet at about 4:00 in the afternoon. Keeps me fairly focused throughout the evening. If I don't take that short-acting tablet, I'll start to lose time once it gets dark.

    No lying, ADHD can be tough to deal with, especially if you have other sources of stress. My freshman year, I was in a bad relationship with a girl from California. She was emotionally abusive and made my life hell--so much so that I couldn't even start to think about homework until after she had gone to sleep. Combine that with the three-hour time difference, and I wasn't starting homework until three in the morning. I ended up staying awake for four days in a row on a weekly basis.

    Medication really does help, though. Everything seems brighter and more manageable when you've taken them. The one thing to watch out for is side-effects--in some cases, Concerta or Ritalin can cause depression. I'm not sure about Focalin--I certainly haven't noticed any depression from it--but pay attention, just in case.

    My final note is simple: Don't let people tell you that you don't have ADHD. Don't let them tell you that you should be weaning yourself off of your meds. Don't let them trivialize what you have. People WILL try, and you just have to resist it. Because ADHD is a real problem, but there are morons out there who think it's just a phase.

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    Replies
    1. I know what you mean about writing. It's one of my favorite passtimes. I wrote a whole book in middle school with no problem, but now it's painful to even try. I completely failed June Camp NaNoWriMo, even though I had nothing else to do, and every day that passed made me feel more and more guilty. And every time I see the clock late at night I hate myself for being unable to control my own actions.

      The Focalin that I have is the short-acting kind. It did help yesterday, so I'm going to try again today, but earlier so it won't keep me up. I'm also thinking of trying to use my phone alarm to let me know when I should start doing something in case I'm spacing out.

      In any case, I'm really excited for this week. I think this may the start of my recovery. I hope I'm able to go back to school next semester and learn as fast and as well as I used to, and maybe even enjoy it. :D

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    2. Definitely look into getting Focalin XR for the morning. I take twenty-five milligrams of XR in the morning, then 10 milligrams of short-acting in the afternoon.

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    3. Ah, yes, ADHD-I. I'd be careful with the medication, even the short-acting kind - I took maybe 3 mg of Adderall at 7 PM once and couldn't fall asleep until 2:30. Even if your ADHD is worse, make sure you know exactly what amount when you take it.
      I went off medication after 5 years of taking Adderall, right when I went into 8th grade. My reasons were that I was barely eating anything (in 36 hours, a bowl of peas), the effects were wearing off and going to a higher dose would exacerbate my other side effects. It backfired, clearly, but I've managed okay since. If I really need to concentrate I eat something with sugar - caffeinated soda if it gets serious - like chocolate or a slurpee. I still have a tiny appetite, but at least I don't accidentally overdose and stay terrified into the wee hours of the day.
      I was diagnosed early, though, so I could figure out what was wrong and methods to deal with it.

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  3. I read Dr. Daniel Amen's book identifying 5 types of ADD. My life and symptoms aligned perfectly with the Fire type. It really explained a lot about my high school, college, and later life. It absolutely happens to me that trying to concentrate on a topic decreases my brain activity and makes it almost impossible to learn.

    Of course, nothing got diagnosed along these lines long ago, but if I had even an inkling, I wouldn't necessarily have assumed I was lazy and unwilling.

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